I know I didn’t tell everyone about this. I did talk about my downgrade health, but I didn’t tell too many about only having a couple of months to live. There are reasons, most of all I didn’t want pity. I also want to live each and everyday like it is my last. But if I told everyone it may be my last people would of changed. Not that they want to it is just the way life is. I wanted to be treated like it is me, not the me who may pass anytime soon. I truly went back and forth with how I was going to handle this. I have been blessed and lucky to be me. Also to have this “extra” chance at life!
So you can see why it is a very emotional day and time. It being April only adds so much more to this. I am truly blessed to have so many great people in my life. I truly love and thank you all! I do have to say this one thing.. This has truly put my life in perspective. Also am I out of the woods? No! Will it get better? I don’t know! I do know that I am here and I never take that for granted. I really believe that I was put on this Earth for a reason. Some of that reason I know, but some other reasons I have yet to discover. I honestly don’t know if I want to know why? I do know I am here because of my family and my friends. I am also here to continue to fight. I want to believe I am also here to inspire others to never give up! Giving up is NEVER an option!
Today is a very emotional day for me! I know I should be happy but I am very emotional today. You see on this day last year I was told by my doctors that I am terminally ill. I was actually told a couple of days before this by one of my doctors. But this time last year I was told by 3 doctors that there was nothing they could do for me. Imagine going into your doctor’s office and see one of your other doctors there and another one on the phone telling you that you probably have only a couple of months to live. It truly was one of the hardest days of my life! The hardest part wasn’t me getting the news, it was having to tell my family, especially wife and daughter.
I was truly blessed and lucky that one of my doctors was able to find a specialist who has stabilize my living. I know it is not a cure, but it’s helped me live an extra 9 months.
I don’t know what the future has in store for me, but I do know I have been blessed and taking each day as a blessing. I love you all!
My life as a Rare Disease patient 
Never give up…there is always hope. I’m glad I had a chance to feature you on my blog Frank, and I hope and pray that things continue to improve for you.
Pamela
pamelajessen.com
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Frank thank you for sharing your story and your life. You are an inspiration to me and many. You have worked do hard for Sarcoidosis patients every where. God bless you and your beautiful family 🙏!
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