Hi my name is Frank Rivera. I am a Rare Disease Patient Advocate. I have been diagnosed with Sarcoidosis since 2011. I am writing this blog partly to let the community know about the life and times of a Rare Disease Patient . I also am writing in this blog to help me cope with living with a Rare Disease.
2 thoughts on “About”
I have been diagnosed with Cardiac Sarcordosis. I am on a second round of treatment now. What type of resources, doctors, etc. can you share? I have been to Cleveland Clinic working with doctors there and here at St. Francis.
You usually get this from working around alot of dust…hmmmmm
That is one way of getting this disease.