Hi my name is Frank Rivera. I am a Rare Disease Patient Advocate. I have been diagnosed with Sarcoidosis since 2011. I am writing this blog partly to let the community know about the life and times of a Rare Disease Patient . I also am writing in this blog to help me cope with living with a Rare Disease.
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My life as a Rare Disease patient 
I have been diagnosed with Cardiac Sarcordosis. I am on a second round of treatment now. What type of resources, doctors, etc. can you share? I have been to Cleveland Clinic working with doctors there and here at St. Francis.
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You usually get this from working around alot of dust…hmmmmm
That is one way of getting this disease.
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