How are you feeling now. I was dignoised 2000 with Sarcoidosis! It’s has been ruff on me. I also have congestion heart failure. Kidney disease. I get so so weak, and my body be hurting and in the morning willie have to give me range of motion because I be so sore. When I wake up.
Unfortunately right now I am not doing well. I have been downgraded from chronic to terminally ill and I had an aneurysm recently but they can’t find out where yet. I had a lumbar puncture two weeks ago and have another one tomorrow. It is crazy that they can’t find anything.
My life as a Rare Disease patient 
How are you feeling now. I was dignoised 2000 with Sarcoidosis! It’s has been ruff on me. I also have congestion heart failure. Kidney disease. I get so so weak, and my body be hurting and in the morning willie have to give me range of motion because I be so sore. When I wake up.
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Unfortunately right now I am not doing well. I have been downgraded from chronic to terminally ill and I had an aneurysm recently but they can’t find out where yet. I had a lumbar puncture two weeks ago and have another one tomorrow. It is crazy that they can’t find anything.
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