I am making videos about my journey with Sarcoidosis and Parkinson’s. I made these videos with the hope it may help at least one person to show them 3 things. I want you to know we all have our own battles and wars. Don’t ever think yours is too menial. We deal with what we are handed!
1- Never Give Up! You are strong enough to fight! My motto is “I have Sarcoidosis, but it doesn’t have me!”
2- One person can make a difference! You and your story means a lot. Don’t be afraid to tell your story!
3- You are Not Alone!
I made 5 Episodes (Videos):
Just click on the underline name of the Episodes to watch these videos. Good luck and I hope you understand my thoughts and feelings!!
I do know they are long, but I wanted to put my feelings and my thoughts so you can see what I have been through and that you can still fight!!
1- My Crusade to find a diagnosis.
My Crusade to Find a Diagnosis
2- My diagnosis and Surgeries.
3- My Advocate Years.
4- 2018-What a Year.
My Story Then and Now- Episode 4- 2018 What a Year!!
5. Thank You All.
My Story Then and Now- Episode 5-Thank you
These videos tell some of my experiences with having a rare disease called, Sarcoidosis, and having Parkinson’s. I know it has been a long battle, but honestly hope it will be so much longer!
You see this battle has really taken me on a ride, but yet I am still here!! I am also still smiling!!
These diseases have changed my life, but has not changed my will!
As I have always said ” I MAY HAVE SARCOIDOSIS AND PARKINSON’S, BUT IT DOESN’T HAVE ME!” I MAY PASS DUE TO THESE DISEASES, BUT I KNOW I WON!!!
ME BEING ABLE TO WRITE THIS RIGHT NOW SHOWS THAT I HAVE WON!!!
My life as a Rare Disease patient 