Well let me tell you what “One of those days” mean to me….
Today sadness has been my friend. Depressed that my life is changing. I know I shouldn’t be putting this on my blog. But this is part of life… MY LIFE!
Life is always changing… Well change is not always easy too! I am adapting to the NEW ME!
Will I be able to accept this I don’t know. I do know I have said I am adaptable, but I need to really look to my inner self and say “Are you ready to adapt?”
I think I am…. I hope I am!!
I love life even with these diseases I have. I learned to love life!
Just been very hard to know you want to do things but aren’t physically able to do them.
I have taken many steps back, for the better of my health. It has been the hardest decisions I have ever made since finding out I have Sarcoidosis…
I am fighting an inner battle to figure out my strength. I know it is there just have to find it again!
Just know I am always with the Rare Disease Community and will pick my battles. If I do step back from certain events or fights it is only because I need to get better.
I need to have an internal peace… I can honestly say I don’t know what that is! But I am looking for ways to get there.
I will leave it with this:
My new phrase is: ” I AM SCARED, BUT I AM TRYING!” That is all I know how to do!
My life as a Rare Disease patient 